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Health professional communication and the diagnosis and care of infants born with cleft lip and palate in the U.K.

Research output: Contribution to journalArticle

Original languageEnglish
Pages (from-to)236-243
Number of pages8
JournalJournal of Neonatal Nursing
Issue number5
Early online date7 Jun 2016
DateAccepted/In press - 10 Apr 2016
DateE-pub ahead of print - 7 Jun 2016
DatePublished (current) - Oct 2016


Objectives A qualitative study was conducted to explore family experiences of communication with health care professionals following the diagnosis and birth of a child with cleft lip and/or palate in the United Kingdom. Twenty four interviews were conducted with families who had a child born with cleft lip and/or palate. Analysis of the data revealed that a diagnosis of cleft lip and/or palate may not be handled sensitively by the non-specialist health professionals who are providing care. Furthermore, a lack of knowledge and inadequate support may continue after the child is born as some health professionals do not provide accurate or appropriate advice relevant to this condition. The findings have implications for current clinical practice with regard to the diagnosis and care of infants born with cleft lip and/or palate in the United Kingdom. These implications are discussed within the context of improving and developing communication in the diagnosis and care of children with cleft lip and/or palate and Experienced-Based Co Design.

    Research areas

  • Cleft lip, Cleft palate, Health care professionals, Sonographer, Communication, Diagnosis, Clinical Nurse Specialist, Midwife, Breastfeeding, Bottle-feeding

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    Rights statement: This is the accepted author manuscript (AAM). The final published version (version of record) is available online via Elsevier at Please refer to any applicable terms of use of the publisher.

    Accepted author manuscript, 469 KB, PDF document

    Licence: CC BY-NC-ND


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