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Health professional communication and the diagnosis and care of infants born with cleft lip and palate in the U.K.

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Health professional communication and the diagnosis and care of infants born with cleft lip and palate in the U.K. / Searle, Aidan; Ryan, Sara; Waylen, Andrea.

In: Journal of Neonatal Nursing, Vol. 22, No. 5, 10.2016, p. 236-243.

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@article{6ab1a456dcb14534899ebf6237da2a56,
title = "Health professional communication and the diagnosis and care of infants born with cleft lip and palate in the U.K.",
abstract = "Objectives A qualitative study was conducted to explore family experiences of communication with health care professionals following the diagnosis and birth of a child with cleft lip and/or palate in the United Kingdom. Twenty four interviews were conducted with families who had a child born with cleft lip and/or palate. Analysis of the data revealed that a diagnosis of cleft lip and/or palate may not be handled sensitively by the non-specialist health professionals who are providing care. Furthermore, a lack of knowledge and inadequate support may continue after the child is born as some health professionals do not provide accurate or appropriate advice relevant to this condition. The findings have implications for current clinical practice with regard to the diagnosis and care of infants born with cleft lip and/or palate in the United Kingdom. These implications are discussed within the context of improving and developing communication in the diagnosis and care of children with cleft lip and/or palate and Experienced-Based Co Design.",
keywords = "Cleft lip, Cleft palate, Health care professionals, Sonographer, Communication, Diagnosis, Clinical Nurse Specialist, Midwife, Breastfeeding, Bottle-feeding",
author = "Aidan Searle and Sara Ryan and Andrea Waylen",
year = "2016",
month = "10",
doi = "10.1016/j.jnn.2016.04.005",
language = "English",
volume = "22",
pages = "236--243",
journal = "Journal of Neonatal Nursing",
issn = "1355-1841",
publisher = "Stansted News Ltd",
number = "5",

}

RIS - suitable for import to EndNote

TY - JOUR

T1 - Health professional communication and the diagnosis and care of infants born with cleft lip and palate in the U.K.

AU - Searle, Aidan

AU - Ryan, Sara

AU - Waylen, Andrea

PY - 2016/10

Y1 - 2016/10

N2 - Objectives A qualitative study was conducted to explore family experiences of communication with health care professionals following the diagnosis and birth of a child with cleft lip and/or palate in the United Kingdom. Twenty four interviews were conducted with families who had a child born with cleft lip and/or palate. Analysis of the data revealed that a diagnosis of cleft lip and/or palate may not be handled sensitively by the non-specialist health professionals who are providing care. Furthermore, a lack of knowledge and inadequate support may continue after the child is born as some health professionals do not provide accurate or appropriate advice relevant to this condition. The findings have implications for current clinical practice with regard to the diagnosis and care of infants born with cleft lip and/or palate in the United Kingdom. These implications are discussed within the context of improving and developing communication in the diagnosis and care of children with cleft lip and/or palate and Experienced-Based Co Design.

AB - Objectives A qualitative study was conducted to explore family experiences of communication with health care professionals following the diagnosis and birth of a child with cleft lip and/or palate in the United Kingdom. Twenty four interviews were conducted with families who had a child born with cleft lip and/or palate. Analysis of the data revealed that a diagnosis of cleft lip and/or palate may not be handled sensitively by the non-specialist health professionals who are providing care. Furthermore, a lack of knowledge and inadequate support may continue after the child is born as some health professionals do not provide accurate or appropriate advice relevant to this condition. The findings have implications for current clinical practice with regard to the diagnosis and care of infants born with cleft lip and/or palate in the United Kingdom. These implications are discussed within the context of improving and developing communication in the diagnosis and care of children with cleft lip and/or palate and Experienced-Based Co Design.

KW - Cleft lip

KW - Cleft palate

KW - Health care professionals

KW - Sonographer

KW - Communication

KW - Diagnosis

KW - Clinical Nurse Specialist

KW - Midwife

KW - Breastfeeding

KW - Bottle-feeding

U2 - 10.1016/j.jnn.2016.04.005

DO - 10.1016/j.jnn.2016.04.005

M3 - Article

VL - 22

SP - 236

EP - 243

JO - Journal of Neonatal Nursing

T2 - Journal of Neonatal Nursing

JF - Journal of Neonatal Nursing

SN - 1355-1841

IS - 5

ER -